{"id":4306,"date":"2025-08-05T13:04:38","date_gmt":"2025-08-05T13:04:38","guid":{"rendered":"https:\/\/practicalhealthpsychology.com\/?p=4306"},"modified":"2026-04-09T07:47:21","modified_gmt":"2026-04-09T07:47:21","slug":"mylifetool-a-person-centred-holistic-approach-to-the-self-management-of-long-term-conditions","status":"publish","type":"post","link":"https:\/\/practicalhealthpsychology.com\/sk\/2025\/08\/mylifetool-a-person-centred-holistic-approach-to-the-self-management-of-long-term-conditions\/","title":{"rendered":"MyLifeTool: Pr\u00edstup zameran\u00fd na \u010dloveka a jeho potreby pri zvl\u00e1dan\u00ed dlhodob\u00fdch zdravotn\u00fdch probl\u00e9mov"},"content":{"rendered":"<p><strong>By\u00a0Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK and Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, UK<\/strong><\/p>\n<p><span style=\"font-weight: 400;\">Dlhodob\u00e9 ochorenia predstavuj\u00fa z\u00e1sadn\u00fa v\u00fdzvu pre zdravotn\u00edcke syst\u00e9my po celom svete vzh\u013eadom na ich <\/span><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/39869379\/\"><span style=\"font-weight: 400;\">vysok\u00fa prevalenciu<\/span><\/a><span style=\"font-weight: 400;\"> a <\/span><a href=\"https:\/\/www.thelancet.com\/journals\/lancet\/article\/PIIS0140-6736(20)30925-9\/fulltext\"><span style=\"font-weight: 400;\">z\u00e1\u0165a\u017e, ktor\u00fa prin\u00e1\u0161aj\u00fa \u2013 vr\u00e1tane v\u00fdznamn\u00e9ho skr\u00e1tenia rokov \u017eivota v zdrav\u00ed v d\u00f4sledku chor\u00f4b a postihnutia<\/span><\/a><span style=\"font-weight: 400;\">. Tieto ochorenia tie\u017e v\u00fdznamne zni\u017euj\u00fa <\/span><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/31531840\/\"><span style=\"font-weight: 400;\">kvalitu \u017eivota s\u00favisiace so zdrav\u00edm<\/span><\/a><span style=\"font-weight: 400;\"> a s\u00fa spojen\u00e9 s <\/span><a href=\"https:\/\/www.cambridge.org\/core\/journals\/bjpsych-open\/article\/mental-health-outcomes-in-patients-with-a-longterm-condition-analysis-of-an-improving-access-to-psychological-therapies-service\/541E3611F5AC8EA4E19911C4FEC4B645\"><span style=\"font-weight: 400;\">vy\u0161\u0161\u00edm v\u00fdskytom \u00fazkosti a depresie<\/span><\/a><span style=\"font-weight: 400;\"> ako u be\u017enej popul\u00e1cie.<\/span><\/p>\n<p><a href=\"http:\/\/www.mylifetool.co.uk\/\"><span style=\"font-weight: 400;\">MyLifeTool<\/span><\/a><span style=\"font-weight: 400;\"> je n\u00e1stroj na podporu sebamana\u017ementu ur\u010den\u00fd \u013eu\u010fom \u017eij\u00facim s ak\u00fdmko\u013evek dlhodob\u00fdm ochoren\u00edm (napr. diabetes, roztr\u00fasen\u00e1 skler\u00f3za, chronick\u00e1 boles\u0165, astma, \u00fazkosti, neurov\u00fdvinov\u00e9 poruchy, z\u00edskan\u00e9 po\u0161kodenie mozgu, fibromyalgia). Vyv\u00edjan\u00fd bol v spolupr\u00e1ci s \u013eu\u010fmi s\u00a0chronick\u00fdmi ochoreniami, \u010dlenmi organiz\u00e1cie <\/span><a href=\"http:\/\/www.neurokey.co.uk\/\"><span style=\"font-weight: 400;\">Neuro Key<\/span><\/a><span style=\"font-weight: 400;\"> a psychol\u00f3gmi z Teesside University. Z\u00e1kladom tohto n\u00e1stroja je n\u00e1\u0161 <\/span><a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/09638288.2020.1764115\"><span style=\"font-weight: 400;\">syst\u00e9m na sebamana\u017ement<\/span><\/a><span style=\"font-weight: 400;\">, ktor\u00fd je zameran\u00fd na \u010dloveka a je bez in\u0161trukci\u00ed. \u013dudia s dlhodob\u00fdmi zdravotn\u00fdmi probl\u00e9mami st\u00e1li v centre cel\u00e9ho projektu \u2013 rozhodovali o tom, ako bude MyLifeTool vyzera\u0165, a sami vybrali jeho n\u00e1zov.<\/span><\/p>\n<p><b>N\u00e1\u0161 pr\u00edstup k sebamana\u017ementu<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Strat\u00e9gie sebamana\u017ementu pri chronick\u00fdch ochoreniach sa \u010dasto <\/span><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hex.12453\"><span style=\"font-weight: 400;\">zameriavaj\u00fa na medic\u00ednske v\u00fdsledky a kontroln\u00e9 postupy<\/span><\/a><span style=\"font-weight: 400;\"> alebo na zmenu spr\u00e1vania, pri\u010dom <\/span><a href=\"https:\/\/journals.sagepub.com\/doi\/epub\/10.1177\/14407833211038059\"><span style=\"font-weight: 400;\">zab\u00fadaj\u00fa na \u0161ir\u0161\u00ed soci\u00e1lny a vz\u0165ahov\u00fd kontext<\/span><\/a><span style=\"font-weight: 400;\">. Alternat\u00edvne mo\u017eno sebamana\u017ement chronick\u00fdch ochoren\u00ed ch\u00e1pa\u0165 ako <\/span><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/27272388\/\"><span style=\"font-weight: 400;\">celo\u017eivotn\u00fd a premenliv\u00fd proces<\/span><\/a><span style=\"font-weight: 400;\">, ktor\u00fd sa prisp\u00f4sobuje \u017eivotn\u00fdm okolnostiam a kol\u00edsaniu pr\u00edznakov. Z tohto d\u00f4vodu sa navrhuje prechod od <\/span><a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/09638288.2018.1473508\"><span style=\"font-weight: 400;\">na in\u0161trukci\u00e1ch zalo\u017een\u00fdch pr\u00edstupov k sebamana\u017ementu<\/span><\/a><span style=\"font-weight: 400;\"> k tak\u00fdm, ktor\u00e9 podporuj\u00fa samostatn\u00e9 prem\u00fd\u0161\u013eanie a rozvoj vlastn\u00fdch zdrojov. Sebamana\u017ement preto vn\u00edmame ako cestu <\/span><a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/09638288.2020.1764115\"><span style=\"font-weight: 400;\">k n\u00e1jdeniu alebo udr\u017eaniu zmyslu a cie\u013ea v \u017eivote<\/span><\/a><span style=\"font-weight: 400;\">. Ide o nepretr\u017eit\u00fd proces, ku ktor\u00e9mu \u013eudia pristupuj\u00fa zo svojho vlastn\u00e9ho poh\u013eadu \u2013 v s\u00falade so svoj\u00edm \u017eivotn\u00fdm \u0161t\u00fdlom, cie\u013emi, potrebami a meniacim sa zdravotn\u00fdm stavom. V centre pozornosti je \u010dlovek, nie diagn\u00f3za. Pr\u00e1ve preto kladie MyLifeTool ve\u013ek\u00fd d\u00f4raz na to, aby sa pou\u017e\u00edvatelia sami zam\u00fd\u0161\u013eali nad t\u00fdm, ktor\u00e9 strat\u00e9gie sebamana\u017ementu im vyhovuj\u00fa \u2013 a ktor\u00e9 nie.<\/span><\/p>\n<p><b>\u0160trukt\u00fara MyLife Tool<\/b><\/p>\n<p><span style=\"font-weight: 400;\">MyLifeTool tvor\u00ed p\u00e4\u0165 bro\u017e\u00far, ktor\u00e9 obsahuj\u00fa r\u00f4zne aktivity z oblasti pozit\u00edvnej psychol\u00f3gie a podporuj\u00fa pou\u017e\u00edvate\u013eov v objavovan\u00ed vlastn\u00fdch siln\u00fdch str\u00e1nok. V\u00fdskumy ukazuj\u00fa, \u017ee <\/span><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/29320877\/\"><span style=\"font-weight: 400;\">zmyslupln\u00fd \u017eivot je pre \u013eud\u00ed s dlhodob\u00fdmi ochoreniami<\/span><\/a><span style=\"font-weight: 400;\"> ve\u013emi d\u00f4le\u017eit\u00fd a <\/span><a href=\"https:\/\/www.researchgate.net\/publication\/23545616_Know_Thyself_and_Become_What_You_Are_A_Eudaimonic_Approach_to_Psychological_Well-Being\"><span style=\"font-weight: 400;\">s\u00favis\u00ed s osobn\u00fdm rastom aj lep\u0161\u00edmi zdravotn\u00fdmi v\u00fdsledkami.<\/span><\/a><\/p>\n<p><b>Kniha 1: \u201eJa a m\u00f4j stav\u201c<\/b><span style=\"font-weight: 400;\"> sa zameriava na identitu a na to, ako sa za\u010da\u0165 vn\u00edma\u0165 v pozit\u00edvnej\u0161om svetle. Je o v\u00e4\u010d\u0161ej l\u00e1skavosti k sebe sam\u00e9mu a o uvedomen\u00ed si, \u017ee \u010dlovek nie je definovan\u00fd svojou diagn\u00f3zou. Bro\u017e\u00fara obsahuje aktivity, ktor\u00e9 povzbudzuj\u00fa k zamysleniu sa nad t\u00fdm, kto sme, ak\u00e9 m\u00e1me hodnoty a \u010do od seba o\u010dak\u00e1vame.<\/span><\/p>\n<p><b>Kniha 2: \u201ePrij\u00edmanie tela\u201c<\/b><span style=\"font-weight: 400;\"> sa zaober\u00e1 pl\u00e1novan\u00edm a rozvrhnut\u00edm aktiv\u00edt, ako ich \u010dasto v\u00eddame v programoch zameran\u00fdch na zvl\u00e1danie ochoren\u00ed. Aktivity povzbudzuj\u00fa k po\u010d\u00favaniu vlastn\u00e9ho telu, k rozpoznaniu momentov, kedy sme toho urobili pr\u00edli\u0161, ak zamysleniu sa nad sp\u00f4sobmi, ako lep\u0161ie pracova\u0165 s vlastnou energiou.<\/span><\/p>\n<p><b>Kniha 3: &#8220;Prevzatie zodpovednosti&#8221;<\/b><span style=\"font-weight: 400;\"> je zameran\u00e1 na rozpoznanie vlastn\u00fdch siln\u00fdch str\u00e1nok, budovanie odolnosti a vyu\u017e\u00edvanie dobr\u00fdch dn\u00ed naplno. Podporuje akt\u00edvnej\u0161\u00ed pr\u00edstup k zvl\u00e1daniu ochoren\u00ed skrze lep\u0161ie porozumenie vlastn\u00e9mu stavu a jeho miestu v \u017eivote. Aktivity zah\u0155\u0148aj\u00fa stanovovanie cie\u013eov a uvedomovanie si siln\u00fdch str\u00e1nok.<\/span><\/p>\n<p><b>Kniha 4: \u201eSpojenie s ostatn\u00fdmi\u201c<\/b><span style=\"font-weight: 400;\"> rozpozn\u00e1va d\u00f4le\u017eitos\u0165 prij\u00edmania podpory, ale aj pr\u00ednosy poskytovania podpory druh\u00fdm \u2013 oboje m\u00f4\u017ee posilni\u0165 pocit zmyslu a \u017eivotn\u00e9ho naplnenia. Aktivity sa zameriavaj\u00fa na to, ako komunikova\u0165 svoje potreby vo\u010di druh\u00fdm \u2013 \u010di u\u017e ide o rodinu a priate\u013eov, alebo zdravotn\u00edkov a \u010fal\u0161\u00edch odborn\u00edkov.<\/span><\/p>\n<p><b>Kniha 5: &#8220;\u010co je pre m\u0148a d\u00f4le\u017eit\u00e9&#8221;<\/b><span style=\"font-weight: 400;\"> sa zameriava na to, \u010do \u010dloveku dod\u00e1va zmysel \u017eivota a ako si n\u00e1js\u0165 \u010das s\u00e1m pre seba. \u013dudia nach\u00e1dzaj\u00fa zmysel r\u00f4znymi sp\u00f4sobmi \u2013 t\u00fdm, \u017ee zost\u00e1vaj\u00fa akt\u00edvni, maj\u00fa d\u00f4vod vsta\u0165 r\u00e1no z postele alebo si klad\u00fa v\u00fdzvy.<\/span><\/p>\n<p><b>Reflexn\u00fd zo\u0161it<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Pre podporu reflexie obsahuje MyLifeTool aj kreat\u00edvny z\u00e1pisn\u00edk \u2013 priestor, ktor\u00fd pom\u00e1ha \u013eu\u010fom prem\u00fd\u0161\u013ea\u0165 o svojich sk\u00fasenostiach, cie\u013eoch a dosiahnut\u00fdch pokrokoch. Tento z\u00e1pisn\u00edk je otvoren\u00fd a nedirekt\u00edvny, tak\u017ee ho ka\u017ed\u00fd m\u00f4\u017ee vyu\u017ei\u0165 sp\u00f4sobom, ktor\u00fd mu vyhovuje \u2013 \u010di u\u017e prostredn\u00edctvom r\u00f4znych kreat\u00edvnych techn\u00edk alebo jednoducho ako denn\u00edk. Pr\u00e1ve tak\u00e9to <\/span><a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/14780887.2018.1456590\"><span style=\"font-weight: 400;\">tvoriv\u00e9 pr\u00edstupy<\/span><\/a><span style=\"font-weight: 400;\"> m\u00f4\u017eu \u013eu\u010fom umo\u017eni\u0165 hlb\u0161ie sk\u00famanie vlastn\u00fdch z\u00e1\u017eitkov a reflexiu ich v\u00fdznamu autentickej\u0161\u00edm sp\u00f4sobom.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">MyLifeTool je vyu\u017e\u00edvan\u00fd organiz\u00e1ciami neziskov\u00e9ho sektora a odborn\u00edkmi v oblasti du\u0161evn\u00e9ho zdravia vo Ve\u013ekej Brit\u00e1nii. Je vo\u013ene dostupn\u00fd <\/span><a href=\"http:\/\/www.mylifetool.co.uk\/\"><span style=\"font-weight: 400;\">online<\/span><\/a><span style=\"font-weight: 400;\"> \u2013 tak pre \u013eud\u00ed s dlhodob\u00fdmi ochoreniami, ako aj pre odborn\u00edkov, ktor\u00ed ho m\u00f4\u017eu vyu\u017ei\u0165 pri pr\u00e1ci s klientmi alebo pacientmi.<\/span><\/p>\n<p><b>Evalu\u00e1cia MyLifeTool<\/b><\/p>\n<p><a href=\"https:\/\/research.tees.ac.uk\/ws\/portalfiles\/portal\/95368897\/Final_report_MyLifeTool_Regional_Evaluation.pdf\"><span style=\"font-weight: 400;\">\u013dudia, ktor\u00ed pou\u017e\u00edvali MyLifeTool po dobu 12 t\u00fd\u017ed\u0148ov<\/span><\/a><span style=\"font-weight: 400;\">, ho hodnotili ako u\u017eito\u010dn\u00fd n\u00e1stroj na podporu zvl\u00e1dania ochoren\u00ed, osobn\u00e9ho rozvoja a posilnenia prijatia \u017eivota s dlhodob\u00fdm ochoren\u00edm. Meranie du\u0161evnej pohody pred a po pou\u017eit\u00ed n\u00e1stroja navy\u0161e uk\u00e1zala zlep\u0161enie v oblastiach sebad\u00f4very (self-efficacy), posilnenie kompetenci\u00ed (empowerment) a schopnosti rozvrhn\u00fa\u0165 si energiu v \u010dase (pacing).<\/span><\/p>\n<p><b>Praktick\u00e9 odpor\u00fa\u010dania<\/b><\/p>\n<p><b>Vn\u00edmajme \u010dloveka, nie diagn\u00f3zu:<\/b><span style=\"font-weight: 400;\"> chronick\u00e9 ochorenia ovplyv\u0148uj\u00fa v\u0161etky aspekty \u017eivota. M\u00f4\u017eeme \u013eud\u00ed podpori\u0165 v tom, aby prem\u00fd\u0161\u013eali o tom, ako ich ochorenie zapad\u00e1 do ich \u017eivota \u2013 s oh\u013eadom na mo\u017en\u00e9 zmeny zdravotn\u00e9ho stavu, \u017eivotn\u00fdch okolnost\u00ed, potrieb i bud\u00facich cie\u013eov.<\/span><\/p>\n<p><b>Sebamana\u017ement je nepretr\u017eit\u00fd proces:<\/b><span style=\"font-weight: 400;\"> \u010dlovek sa nem\u00f4\u017ee nau\u010di\u0165 zvl\u00e1da\u0165 svoje ochorenie iba absolvovan\u00edm kr\u00e1tkeho kurzu. Chronick\u00e9 ochorenia m\u00f4\u017eu pretrv\u00e1va\u0165 cel\u00fd \u017eivot a ich pr\u00edznaky aj dopady sa m\u00f4\u017eu v \u010dase meni\u0165. Podpora reflexie vlastn\u00e9ho sebamana\u017ementu m\u00f4\u017ee \u013eu\u010fom pom\u00f4c\u0165 prisp\u00f4sobi\u0165 sa zmen\u00e1m v \u017eivotn\u00fdch okolnostiach aj v zdravotnom stave v dlh\u0161om \u010dasovom horizonte.<\/span><\/p>\n<p><b>Zmysel a cie\u013e:<\/b><span style=\"font-weight: 400;\"> podporujme \u013eud\u00ed s chronick\u00fdmi ochoreniami v tom, aby sa zam\u00fd\u0161\u013eali nad t\u00fdm, \u010do im v \u017eivote prin\u00e1\u0161a zmysel a pocit naplnenia.<\/span><\/p>\n<p><b>Zameranie na siln\u00e9 str\u00e1nky:<\/b><span style=\"font-weight: 400;\"> pou\u017e\u00edvatelia MyLifeTool oce\u0148uj\u00fa, \u017ee sa n\u00e1stroj zameriava na to, \u010do \u013eudia s dlhodob\u00fdm ochoren\u00edm dok\u00e1\u017eu \u2013 namiesto toho, \u010do nem\u00f4\u017eu.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Translated by: [Zuzana Dankulincov\u00e1]<\/span><\/p>\n<p><strong>\u00a0<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>By\u00a0Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK and Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, UK\u00a0 Long-term conditions are a major concern for global health care systems given their high prevalence and disease burden, including their significant [&hellip;]<\/p>\n","protected":false},"author":9,"featured_media":4309,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"<strong>By\u00a0Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK and Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, UK\u00a0<\/strong>\n\n<span style=\"font-weight: 400;\">Long-term conditions are a major concern for global health care systems given their <\/span><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/39869379\/\"><span style=\"font-weight: 400;\">high prevalence<\/span><\/a><span style=\"font-weight: 400;\"> and <\/span><a href=\"https:\/\/www.thelancet.com\/journals\/lancet\/article\/PIIS0140-6736(20)30925-9\/fulltext\"><span style=\"font-weight: 400;\">disease burden, including their significant impact on disability-adjusted life years.<\/span><\/a><span style=\"font-weight: 400;\">\u00a0 They also have a significant <\/span><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/31531840\/\"><span style=\"font-weight: 400;\">negative impact on health-related quality of life<\/span><\/a><span style=\"font-weight: 400;\"> and are associated with <\/span><a href=\"https:\/\/www.cambridge.org\/core\/journals\/bjpsych-open\/article\/mental-health-outcomes-in-patients-with-a-longterm-condition-analysis-of-an-improving-access-to-psychological-therapies-service\/541E3611F5AC8EA4E19911C4FEC4B645\"><span style=\"font-weight: 400;\">higher rates of anxiety and depression<\/span><\/a><span style=\"font-weight: 400;\"> than the general population.<\/span>\n\n<a href=\"http:\/\/www.mylifetool.co.uk\"><span style=\"font-weight: 400;\">MyLifeTool<\/span><\/a><span style=\"font-weight: 400;\"> is a self-management tool for people living with any long-term condition (e.g. diabetes, multiple sclerosis, chronic pain, asthma, anxiety, neurodevelopmental conditions, Acquired Brain Injury, Fibromyalgia).\u00a0 It was developed in partnership with people with long-term conditions, members of <\/span><a href=\"http:\/\/www.neurokey.co.uk\"><span style=\"font-weight: 400;\">Neuro Key<\/span><\/a><span style=\"font-weight: 400;\"> and psychologists from Teesside University.\u00a0 It is underpinned by our <\/span><a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/09638288.2020.1764115\"><span style=\"font-weight: 400;\">self-management framework<\/span><\/a><span style=\"font-weight: 400;\"> which takes a person-centred, non-instructive perspective on self-management.\u00a0 People with long-term conditions were at the heart of the project, forging the decisions on what MyLifeTool would become and choosing the name.<\/span><!--more-->\n\n<b>Our approach to self-management<\/b>\n\n<span style=\"font-weight: 400;\">Self-management strategies for long-term conditions often <\/span><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hex.12453\"><span style=\"font-weight: 400;\">focus on medical outcomes and management strategies<\/span><\/a><span style=\"font-weight: 400;\"> and are too concerned with behaviour change, <\/span><a href=\"https:\/\/journals.sagepub.com\/doi\/epub\/10.1177\/14407833211038059\"><span style=\"font-weight: 400;\">neglecting the social and relational context<\/span><\/a><span style=\"font-weight: 400;\">.\u00a0 Alternatively, self-management of long-term conditions can be viewed as a <\/span><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/27272388\/\"><span style=\"font-weight: 400;\">lifelong, fluid process<\/span><\/a><span style=\"font-weight: 400;\"> which can change depending on life circumstances and symptom fluctuation.\u00a0 As a result, there are proposals to <\/span><a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/09638288.2018.1473508\"><span style=\"font-weight: 400;\">move from instructional self-management approaches<\/span><\/a><span style=\"font-weight: 400;\"> to ones which support people to consider and develop their own self-management resources. With this in mind, we view self-management is a journey towards <\/span><a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/09638288.2020.1764115\"><span style=\"font-weight: 400;\">finding or maintaining meaning and purpose in life<\/span><\/a><span style=\"font-weight: 400;\">.\u00a0 It is an ongoing process that people approach from their own perspective, to fit with their life, aims and needs and changes in their condition.\u00a0 It is also about the person, not the diagnosis.\u00a0 For this reason, a large part of MyLifeTool requires users to reflect upon which self-management strategies do and do not work for them.<\/span>\n\n<b>How MyLifeTool is structured<\/b>\n\n<span style=\"font-weight: 400;\">MyLifeTool comprises five booklets which contain different positive psychology activities, encouraging people to explore their strengths.\u00a0 Research has found that <\/span><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/29320877\/\"><span style=\"font-weight: 400;\">living a purposeful life is important to people with long-term conditions<\/span><\/a><span style=\"font-weight: 400;\"> and is <\/span><a href=\"https:\/\/www.researchgate.net\/publication\/23545616_Know_Thyself_and_Become_What_You_Are_A_Eudaimonic_Approach_to_Psychological_Well-Being\"><span style=\"font-weight: 400;\">associated with personal growth and better health outcomes<\/span><\/a><span style=\"font-weight: 400;\">.\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0<\/span>\n\n<b>Book 1: \u201cMe and my condition\u201d,<\/b><span style=\"font-weight: 400;\"> focuses on identity and starting to see yourself in a more positive light.\u00a0 It is about being kinder to yourself and recognising that you are not defined by your condition.\u00a0 The booklet contains activities to encourage people to think about who they are, their values and what they expect from themselves.<\/span>\n\n<b>Book 2<\/b><span style=\"font-weight: 400;\">:<\/span><b> \u201cEmbracing my body\u201d, <\/b><span style=\"font-weight: 400;\">explores planning and pacing strategies that you often see in self-management programmes.\u00a0 Activities encourage you to listen to your body, recognise when you have done too much and reflect upon ways to manage your energy levels.\u00a0<\/span>\n\n<b>Book 3: \u201cTaking charge\u201d,<\/b><span style=\"font-weight: 400;\"> is about recognising your strengths, building resilience and making the most of the good days. It encourages you to be more active in your condition management by learning more about your condition and how it fits within your life.\u00a0 Activities include goal setting and recognising strengths.<\/span>\n\n<b>Book 4: \u201cConnecting with others\u201d,<\/b><span style=\"font-weight: 400;\"> recognises the importance of receiving support, as well as the benefits of giving support to others, as both can enhance meaning and purpose in life.\u00a0 Activities explore how to communicate your needs to others, such as family and friends, but also medical practitioners and other professionals.<\/span>\n\n<b>Book 5<\/b><span style=\"font-weight: 400;\">: <\/span><b>\u201cWhat's important to me\u201d,<\/b><span style=\"font-weight: 400;\"> considers what gives you purpose in life and how you can find time for yourself.\u00a0 People find purpose in a variety of different ways: keeping busy; having a reason to get out of bed in the morning; challenging themselves.<\/span>\n\n<b>The Reflective Scrapbook<\/b>\n\n<span style=\"font-weight: 400;\">To support reflection, MyLifeTool contains a scrapbook; a creative space that can help people to think about their experiences, aims and achievements.\u00a0 T<\/span><span style=\"font-weight: 400;\">he scrapbook is open and non-directive, so people can use various creative activities techniques that suit them, or they can use the scrapbook as a diary if they prefer.\u00a0 <\/span><a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/14780887.2018.1456590\"><span style=\"font-weight: 400;\">Creative approaches<\/span><\/a><span style=\"font-weight: 400;\"> like this can enable people to explore their experiences in detail and reflect upon their meaning in more authentic ways.<\/span><span style=\"font-weight: 400;\">\u00a0<\/span>\n\n<span style=\"font-weight: 400;\">MyLifeTool is used by UK-based voluntary sector organisations and mental health practitioners. It <\/span><span style=\"font-weight: 400;\">is available for free <\/span><a href=\"http:\/\/www.mylifetool.co.uk\"><span style=\"font-weight: 400;\">online<\/span><\/a><span style=\"font-weight: 400;\"> for people with long-term conditions to use themselves or for practitioners to use with patients\/clients.<\/span>\n\n<b>Evaluation of MyLifeTool<\/b>\n\n<a href=\"https:\/\/research.tees.ac.uk\/ws\/portalfiles\/portal\/95368897\/Final_report_MyLifeTool_Regional_Evaluation.pdf\"><span style=\"font-weight: 400;\">People who used MyLifeTool for 12 weeks<\/span><\/a><span style=\"font-weight: 400;\"> found it beneficial in supporting their self-management, personal growth and enhancing their acceptance of living with a long-term condition.\u00a0 Wellbeing measures taken before and after using the tool also show improvements in self-efficacy, empowerment and pacing ability.<\/span>\n\n<b>Practical recommendations<\/b>\n\n<b>See the whole person, not the diagnosis<\/b><span style=\"font-weight: 400;\">: Long-term conditions affect all aspects of a person\u2019s life.\u00a0 We can support people to reflect on how their condition fits into their lives, taking into consideration potential changes in their condition, life circumstances, needs and aims for the future.<\/span>\n\n<b>Self-management is ongoing<\/b><span style=\"font-weight: 400;\">: A person cannot learn to self-manage their condition(s) by taking part in a short course.\u00a0 Long-term conditions are potentially life-long and symptoms and impact can fluctuate.\u00a0 Encouraging people to reflect on their self-management can support them to adapt to changes in their life circumstances and condition long term.<\/span>\n\n<b>Meaning and purpose<\/b><span style=\"font-weight: 400;\">: Support people with long-term conditions to reflect upon and explore what gives them meaning and purpose in life.<\/span>\n\n<b>Focus on strengths<\/b><span style=\"font-weight: 400;\">: People who have used MyLifeTool have valued the way it focuses on what people with long-term conditions can do, rather than what they can\u2019t 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