{"id":4306,"date":"2025-08-05T13:04:38","date_gmt":"2025-08-05T13:04:38","guid":{"rendered":"https:\/\/practicalhealthpsychology.com\/?p=4306"},"modified":"2026-04-09T07:47:21","modified_gmt":"2026-04-09T07:47:21","slug":"mylifetool-a-person-centred-holistic-approach-to-the-self-management-of-long-term-conditions","status":"publish","type":"post","link":"https:\/\/practicalhealthpsychology.com\/pl\/2025\/08\/mylifetool-a-person-centred-holistic-approach-to-the-self-management-of-long-term-conditions\/","title":{"rendered":"MyLifeTool: Skoncentrowane na osobie holistyczne podej\u015bcie do samoregulacji w chorobach przewlek\u0142ych"},"content":{"rendered":"

Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK i Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, Wielka Brytania<\/strong><\/p>\n

Choroby przewlek\u0142e stanowi\u0105 istotne wyzwanie dla globalnych system\u00f3w opieki zdrowotnej ze wzgl\u0119du na wysokie ich rozpowszechnienie<\/a> i obci\u0105\u017cenie z nimi zwi\u0105zane, w tym znacz\u0105cy wp\u0142yw na liczb\u0119 lat \u017cycia skorygowanych o niepe\u0142nosprawno\u015b\u0107<\/a> (DALY). Choroby te istotnie obni\u017caj\u0105 jako\u015b\u0107 \u017cycia zwi\u0105zan\u0105 ze zdrowiem i wi\u0105\u017c\u0105 si\u0119 z podwy\u017cszonym ryzykiem wyst\u0119powania l\u0119ku i depresji<\/a> w por\u00f3wnaniu z populacj\u0105 og\u00f3ln\u0105.<\/p>\n

MyLifeTool<\/a> to narz\u0119dzie samoregulacji dla os\u00f3b \u017cyj\u0105cych z jak\u0105kolwiek doelgliwo\u015bci\u0105 przewlek\u0142\u0105 (np. cukrzyc\u0105, stwardnieniem rozsianym, przewlek\u0142ym b\u00f3lem, astm\u0105, l\u0119kiem, zaburzeniami neurorozwojowymi, nabytymi uszkodzeniami m\u00f3zgu, fibromialgi\u0105). Zosta\u0142o one opracowane we wsp\u00f3\u0142pracy z osobami z przewlek\u0142ymi chorobami, cz\u0142onkami Neuro Key<\/a> i psychologami z Teesside University. Opiera si\u0119 na oparcowanym przez nas systemie samo<\/a>regulacji, kt\u00f3ry przyjmuje skoncentrowan\u0105 na osobie i niedyrektywn\u0105 perspektyw\u0119 samoregulacji. Osoby z przewlek\u0142ymi chorobami by\u0142y w centrum tego projektu, kszta\u0142tuj\u0105c to, czym sta\u0142o si\u0119 MyLifeTool i wybieraj\u0105c jego nazw\u0119.<\/p>\n

<\/p>\n

Nasze podej\u015bcie do samoregulacji<\/strong><\/p>\n

Strategie samoregulacji w przypadku schorze\u0144 przewlek\u0142ych cz\u0119sto koncentruj\u0105 si\u0119 na wynikach medycznych i strategiach leczenia<\/a> oraz skupiaj\u0105 si\u0119 na zmianie zachowania, zaniedbuj\u0105c kontekst spo\u0142eczny i relacyjny<\/a>. Alternatywnie, samoregulacj\u0119 w chorobach \u00a0przewlek\u0142ych mo\u017cna postrzega\u0107 jako proces p\u0142ynny i trwaj\u0105cy ca\u0142e \u017cycie<\/a>, kt\u00f3ry mo\u017ce si\u0119 zmienia\u0107 w zale\u017cno\u015bci od okoliczno\u015bci \u017cyciowych i fluktuacji objaw\u00f3w. Rezulatem takiego spojrzenia s\u0105 propozycje przej\u015bcia od podej\u015b\u0107 do samoregulacji opartych na instrukcjach<\/a> do takich, kt\u00f3re wspieraj\u0105 ludzi w poszukiwaniu i rozwijaniu w\u0142asnych zasob\u00f3w. Maj\u0105c to na uwadze, postrzegamy samoregulacj\u0119 jako podr\u00f3\u017c w kierunku znalezienia lub utrzymania sensu i celu w \u017cyciu<\/a>. Jest to proces, w kt\u00f3rym ludzie uwzgl\u0119dniaj\u0105 w\u0142asn\u0105 perspektyw\u0119, aby dopasowa\u0107 samoregulacj\u0119 do swojego \u017cycia, cel\u00f3w i potrzeb oraz zmian w swoim stanie. Chodzi zatem o osob\u0119, a nie o diagnoz\u0119. Z tego powodu du\u017ca cz\u0119\u015b\u0107 MyLifeTool wymaga od u\u017cytkownik\u00f3w zastanowienia si\u0119 nad tym, kt\u00f3re strategie samoregulacji w ich wypadku dzia\u0142aj\u0105, a kt\u00f3re nie.<\/p>\n

Jak zbudowany jest MyLifeTool<\/strong><\/p>\n

MyLifeTool sk\u0142ada si\u0119 z pi\u0119ciu broszur, kt\u00f3re zawieraj\u0105 opisy r\u00f3\u017cnych pozytywnych interwencji psychologicznych, zach\u0119caj\u0105cych ludzi do odkrywania swoich mocnych stron. Badania wykaza\u0142y, \u017ce sensowne \u017cycie jest wa\u017cne dla os\u00f3b z przewlek\u0142ymi schorzeniami<\/a> i wi\u0105\u017ce si\u0119 z rozwojem osobistym i lepszymi wynikami zdrowotnymi.<\/a><\/p>\n

Ksi\u0105\u017cka 1: \u201eJa i moja dolegliwo\u015b\u0107\u201d,<\/strong> skupia si\u0119 na to\u017csamo\u015bci i postrzegania siebie w bardziej pozytywnym \u015bwietle. Chodzi o bycie dla siebie milszym i uznanie, \u017ce nie jest si\u0119 definiowany przez sw\u00f3j stan. Broszura zawiera \u0107wiczenia zach\u0119caj\u0105ce do my\u015blenia o tym, kim si\u0119 jest, jakie ma si\u0119 warto\u015bci i czego oczekuje si\u0119 od siebie.<\/p>\n

Ksi\u0105\u017cka 2: \u201eDocenianie swojego cia\u0142a\u201d<\/strong> eksploruje strategie planowania i ustalania tempa, kt\u00f3re cz\u0119sto wyst\u0119puj\u0105 w programach samoregulacji. Aktywno\u015bci zach\u0119caj\u0105 do s\u0142uchania swojego cia\u0142a, rozpoznawania nadmiernego wysi\u0142ku i refleksji nad sposobami zarz\u0105dzania poziomem energii.<\/p>\n

Ksi\u0105\u017cka 3: \u201eWzi\u0119cie spraw w swoje r\u0119ce\u201d<\/strong> dotyczy rozpoznawania swoich mocnych stron, budowania odporno\u015bci i jak najlepszego wykorzystywania dobrych dni. Zach\u0119ca do bardziej aktywnego zarz\u0105dzania swoim stanem zdrowia poprzez lepsze poznanie swojego stanu i tego, jak wpisuje si\u0119 on w Twoje \u017cycie. Aktywno\u015bci obejmuj\u0105 wyznaczanie cel\u00f3w i rozpoznawanie mocnych stron.\u00a0Ksi\u0105\u017cka 4: \u201eBycie w kontakcie z innymi\u201d<\/strong> uznaje znaczenie otrzymywania wsparcia, a tak\u017ce korzy\u015bci p\u0142yn\u0105ce z udzielania wsparcia innym, gdy\u017c oba te aspekty mog\u0105 nada\u0107 \u017cyciu sens i cel. \u0106wiczenia te maj\u0105 na celu zbadanie, w jaki spos\u00f3b komunikowa\u0107 swoje potrzeby innym, na przyk\u0142ad rodzinie i przyjacio\u0142om, a tak\u017ce lekarzom i innym specjalistom.<\/p>\n

Ksi\u0105\u017cka 5: \u201eCo jest dla mnie wa\u017cne\u201d<\/strong> rozwa\u017ca, co daje cel w \u017cyciu i jak mo\u017cna znale\u017a\u0107 czas dla siebie. Ludzie znajduj\u0105 sens na wiele r\u00f3\u017cnych sposob\u00f3w: b\u0119d\u0105c zaj\u0119tymi; maj\u0105c pow\u00f3d, aby wsta\u0107 z \u0142\u00f3\u017cka rano; stawiaj\u0105c sobie wyzwania.<\/p>\n

Album refleksji<\/strong><\/p>\n

Aby wesprze\u0107 refleksj\u0119, MyLifeTool zawiera te\u017c scrapbook: kreatywn\u0105 przestrze\u0144, kt\u00f3ra mo\u017ce pom\u00f3c ludziom my\u015ble\u0107 o swoich do\u015bwiadczeniach, celach i osi\u0105gni\u0119ciach. Scrapbook jest otwarty i niedyrektywny, wi\u0119c ludzie mog\u0105 korzysta\u0107 z r\u00f3\u017cnych, odpowiadaj\u0105cych im, \u00a0kreatywnych technik lub, je\u015bli wol\u0105, mog\u0105 u\u017cywa\u0107 scrapbooka jako pami\u0119tnika. Takie kreatywne podej\u015bcie<\/a> sprzyja eksploracji swoich do\u015bwiadcze\u0144 i refleksji nad ich znaczeniem w \u00a0bardziej autentyczny spos\u00f3b.<\/p>\n

MyLifeTool jest u\u017cywany przez brytyjskie organizacje sektora wolontariatu i specjalist\u00f3w zdrowia psychicznego. Jest dost\u0119pny online<\/a> bezp\u0142atnie dla os\u00f3b z przewlek\u0142ymi schorzeniami do samodzielnego u\u017cytku lub dla specjalist\u00f3w do u\u017cytku z pacjentami\/klientami.<\/p>\n

Ewaluacja\u00a0 MyLifeTool<\/strong><\/p>\n

Osoby, kt\u00f3re korzysta\u0142y z MyLifeTool przez 12 tygodni<\/a>, uzna\u0142y, \u017ce wspiera on ich samoregulacj\u0119, rozw\u00f3j osobisty i akceptacj\u0119 \u017cycia z przewlek\u0142\u0105 chorob\u0105. Pomiary dobrostanu przeprowadzone przed i po skorzystaniu z narz\u0119dzia wskazuj\u0105 na wzrost poczucia w\u0142asnej skuteczno\u015bci, sprawczo\u015bci oraz umiej\u0119tno\u015bci adekwatnego gospodarowania energi\u0105 i tempem aktywno\u015bci.<\/p>\n

Zalecenia praktyczne<\/strong><\/p>\n

Patrz na ca\u0142\u0105 osob\u0119, a nie na diagnoz\u0119<\/strong>: przewlek\u0142e choroby oddzia\u0142uj\u0105 na wszystkie aspekty \u017cycia danej osoby. Mo\u017cemy pom\u00f3c ludziom zastanowi\u0107 si\u0119 nad tym, jak ich choroba wpisuje si\u0119 w ich \u017cycie, bior\u0105c pod uwag\u0119 potencjalne zmiany w ich stanie, okoliczno\u015bciach \u017cyciowych, potrzebach i celach na przysz\u0142o\u015b\u0107.<\/p>\n

Samoregulacja to ci\u0105g\u0142y proces:<\/strong> Osoba nie mo\u017ce nauczy\u0107 si\u0119 samoregulacji swojego stanu, bior\u0105c udzia\u0142 w kr\u00f3tkim kursie. Choroby przewlek\u0142e trwaj\u0105 potencjalnie ca\u0142e \u017cycie, a ich objawy i wp\u0142yw mog\u0105 si\u0119 zmienia\u0107. Zach\u0119canie ludzi do refleksji nad samoregulacj\u0105 mo\u017ce pom\u00f3c im w adaptacji do zmian zar\u00f3wno w \u017cyciu, jak i we i w\u0142asnym stanie w d\u0142u\u017cszej perspektywie.<\/p>\n

Sens i cel:<\/strong> Wspieraj osoby z przewlek\u0142ymi schorzeniami w refleksji i odkrywaniu tego, co nadaje im sens i cel w \u017cyciu.<\/p>\n

Skup si\u0119 na mocnych stronach:<\/strong> Osoby, kt\u00f3re korzysta\u0142y z MyLifeTool, doceni\u0142y spos\u00f3b, w jaki skupia si\u0119 on na tym, co osoby z przewlek\u0142ymi schorzeniami mog\u0105 zrobi\u0107, a nie na tym, czego zrobi\u0107 nie mog\u0105.<\/p>\n

Przet\u0142umaczone przez: Zuzann\u0119 Kwiss\u0119-Gajewsk\u0105 i Ew\u0119 Gruszczy\u0144sk\u0105<\/p>\n","protected":false},"excerpt":{"rendered":"

By\u00a0Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK and Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, UK\u00a0 Long-term conditions are a major concern for global health care systems given their high prevalence and disease burden, including their significant […]<\/p>\n","protected":false},"author":9,"featured_media":4309,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"By\u00a0Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK and Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, UK\u00a0<\/strong>\n\nLong-term conditions are a major concern for global health care systems given their <\/span>high prevalence<\/span><\/a> and <\/span>disease burden, including their significant impact on disability-adjusted life years.<\/span><\/a>\u00a0 They also have a significant <\/span>negative impact on health-related quality of life<\/span><\/a> and are associated with <\/span>higher rates of anxiety and depression<\/span><\/a> than the general population.<\/span>\n\nMyLifeTool<\/span><\/a> is a self-management tool for people living with any long-term condition (e.g. diabetes, multiple sclerosis, chronic pain, asthma, anxiety, neurodevelopmental conditions, Acquired Brain Injury, Fibromyalgia).\u00a0 It was developed in partnership with people with long-term conditions, members of <\/span>Neuro Key<\/span><\/a> and psychologists from Teesside University.\u00a0 It is underpinned by our <\/span>self-management framework<\/span><\/a> which takes a person-centred, non-instructive perspective on self-management.\u00a0 People with long-term conditions were at the heart of the project, forging the decisions on what MyLifeTool would become and choosing the name.<\/span>\n\nOur approach to self-management<\/b>\n\nSelf-management strategies for long-term conditions often <\/span>focus on medical outcomes and management strategies<\/span><\/a> and are too concerned with behaviour change, <\/span>neglecting the social and relational context<\/span><\/a>.\u00a0 Alternatively, self-management of long-term conditions can be viewed as a <\/span>lifelong, fluid process<\/span><\/a> which can change depending on life circumstances and symptom fluctuation.\u00a0 As a result, there are proposals to <\/span>move from instructional self-management approaches<\/span><\/a> to ones which support people to consider and develop their own self-management resources. With this in mind, we view self-management is a journey towards <\/span>finding or maintaining meaning and purpose in life<\/span><\/a>.\u00a0 It is an ongoing process that people approach from their own perspective, to fit with their life, aims and needs and changes in their condition.\u00a0 It is also about the person, not the diagnosis.\u00a0 For this reason, a large part of MyLifeTool requires users to reflect upon which self-management strategies do and do not work for them.<\/span>\n\nHow MyLifeTool is structured<\/b>\n\nMyLifeTool comprises five booklets which contain different positive psychology activities, encouraging people to explore their strengths.\u00a0 Research has found that <\/span>living a purposeful life is important to people with long-term conditions<\/span><\/a> and is <\/span>associated with personal growth and better health outcomes<\/span><\/a>.\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0<\/span>\n\nBook 1: \u201cMe and my condition\u201d,<\/b> focuses on identity and starting to see yourself in a more positive light.\u00a0 It is about being kinder to yourself and recognising that you are not defined by your condition.\u00a0 The booklet contains activities to encourage people to think about who they are, their values and what they expect from themselves.<\/span>\n\nBook 2<\/b>:<\/span> \u201cEmbracing my body\u201d, <\/b>explores planning and pacing strategies that you often see in self-management programmes.\u00a0 Activities encourage you to listen to your body, recognise when you have done too much and reflect upon ways to manage your energy levels.\u00a0<\/span>\n\nBook 3: \u201cTaking charge\u201d,<\/b> is about recognising your strengths, building resilience and making the most of the good days. It encourages you to be more active in your condition management by learning more about your condition and how it fits within your life.\u00a0 Activities include goal setting and recognising strengths.<\/span>\n\nBook 4: \u201cConnecting with others\u201d,<\/b> recognises the importance of receiving support, as well as the benefits of giving support to others, as both can enhance meaning and purpose in life.\u00a0 Activities explore how to communicate your needs to others, such as family and friends, but also medical practitioners and other professionals.<\/span>\n\nBook 5<\/b>: <\/span>\u201cWhat's important to me\u201d,<\/b> considers what gives you purpose in life and how you can find time for yourself.\u00a0 People find purpose in a variety of different ways: keeping busy; having a reason to get out of bed in the morning; challenging themselves.<\/span>\n\nThe Reflective Scrapbook<\/b>\n\nTo support reflection, MyLifeTool contains a scrapbook; a creative space that can help people to think about their experiences, aims and achievements.\u00a0 T<\/span>he scrapbook is open and non-directive, so people can use various creative activities techniques that suit them, or they can use the scrapbook as a diary if they prefer.\u00a0 <\/span>Creative approaches<\/span><\/a> like this can enable people to explore their experiences in detail and reflect upon their meaning in more authentic ways.<\/span>\u00a0<\/span>\n\nMyLifeTool is used by UK-based voluntary sector organisations and mental health practitioners. It <\/span>is available for free <\/span>online<\/span><\/a> for people with long-term conditions to use themselves or for practitioners to use with patients\/clients.<\/span>\n\nEvaluation of MyLifeTool<\/b>\n\nPeople who used MyLifeTool for 12 weeks<\/span><\/a> found it beneficial in supporting their self-management, personal growth and enhancing their acceptance of living with a long-term condition.\u00a0 Wellbeing measures taken before and after using the tool also show improvements in self-efficacy, empowerment and pacing ability.<\/span>\n\nPractical recommendations<\/b>\n\nSee the whole person, not the diagnosis<\/b>: Long-term conditions affect all aspects of a person\u2019s life.\u00a0 We can support people to reflect on how their condition fits into their lives, taking into consideration potential changes in their condition, life circumstances, needs and aims for the future.<\/span>\n\nSelf-management is ongoing<\/b>: A person cannot learn to self-manage their condition(s) by taking part in a short course.\u00a0 Long-term conditions are potentially life-long and symptoms and impact can fluctuate.\u00a0 Encouraging people to reflect on their self-management can support them to adapt to changes in their life circumstances and condition long term.<\/span>\n\nMeaning and purpose<\/b>: Support people with long-term conditions to reflect upon and explore what gives them meaning and purpose in life.<\/span>\n\nFocus on strengths<\/b>: People who have used MyLifeTool have valued the way it focuses on what people with long-term conditions can do, rather than what they can\u2019t 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