{"id":4306,"date":"2025-08-05T13:04:38","date_gmt":"2025-08-05T13:04:38","guid":{"rendered":"https:\/\/practicalhealthpsychology.com\/?p=4306"},"modified":"2026-04-09T07:47:21","modified_gmt":"2026-04-09T07:47:21","slug":"mylifetool-a-person-centred-holistic-approach-to-the-self-management-of-long-term-conditions","status":"publish","type":"post","link":"https:\/\/practicalhealthpsychology.com\/id\/2025\/08\/mylifetool-a-person-centred-holistic-approach-to-the-self-management-of-long-term-conditions\/","title":{"rendered":"MyLifeTool: Pendekatan Holistik dan Berpusat pada Individu untuk Manajemen Mandiri Kondisi Kronis"},"content":{"rendered":"

Oleh Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK and Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, UK<\/span><\/p>\n

Kondisi kronis merupakan perhatian utama bagi sistem pelayanan kesehatan di seluruh dunia karena <\/span>prevalensinya yang tinggi<\/span><\/a> dan<\/span> beban penyakit yang ditimbulkannya, termasuk dampaknya yang signifikan terhadap angka harapan hidup yang disesuaikan dengan kecacatan (disability-adjusted life years)<\/span><\/a>. Kondisi ini juga <\/span>berdampak negatif secara signifikan terhadap kualitas hidup<\/span><\/a> yang berhubungan dengan kesehatan, serta dikaitkan dengan <\/span>tingkat kecemasan dan depresi yang lebih tinggi<\/span><\/a> dibandingkan dengan populasi umum.<\/span><\/p>\n

MyLifeTool<\/span><\/a> adalah alat manajemen mandiri bagi individu yang hidup dengan berbagai kondisi kronis (misalnya diabetes, multiple sclerosis, nyeri kronis, asma, kecemasan, kondisi neurodevelopmental, cedera otak yang didapat, fibromyalgia). Alat ini dikembangkan melalui kemitraan dengan orang-orang yang hidup dengan kondisi kronis, anggota <\/span>Neuro Key<\/span><\/a>, dan para psikolog dari Universitas Teesside. Pengembangannya didasarkan pada<\/span> kerangka kerja manajemen mandiri<\/span><\/a> kami yang mengedepankan pendekatan berpusat pada individu dan tidak bersifat menginstruksikan. Orang-orang dengan kondisi kronis menjadi pusat dari proyek ini, berperan langsung dalam pengambilan keputusan mengenai bentuk akhir dari MyLifeTool, termasuk dalam pemilihan namanya.<\/span><\/p>\n

Pendekatan Kami terhadap Manajemen Mandiri<\/b><\/p>\n

Strategi manajemen mandiri untuk kondisi kronis sering kali <\/span>berfokus pada hasil medis dan strategi pengelolaan<\/span><\/a>, serta terlalu menitikberatkan pada perubahan perilaku, sehingga <\/span>mengabaikan konteks sosial<\/span><\/a> dan <\/span>konteks relasional<\/span><\/a>. Sebagai alternatif, manajemen mandiri terhadap kondisi kronis dapat dipandang sebagai<\/span> proses seumur hidup yang bersifat dinamis<\/span><\/a>, yang dapat berubah seiring dengan situasi kehidupan dan fluktuasi gejala. Oleh karena itu, muncul usulan untuk beralih dari<\/span> pendekatan manajemen mandiri yang bersifat instruksional<\/span><\/a> ke pendekatan yang mendukung individu dalam mempertimbangkan dan mengembangkan sumber daya manajemen mandiri mereka sendiri. Dengan pemikiran ini, kami memandang manajemen mandiri sebagai perjalanan untuk <\/span>menemukan atau mempertahankan makna dan tujuan hidup<\/span><\/a>. Ini adalah proses berkelanjutan yang dijalani seseorang dari sudut pandang pribadinya, agar sesuai dengan kehidupannya, tujuan dan kebutuhannya, serta perubahan kondisi yang dialaminya. Manajemen mandiri juga berfokus pada individu itu sendiri, bukan hanya pada diagnosisnya. Untuk alasan ini, sebagian besar dari MyLifeTool mendorong penggunanya untuk merefleksikan strategi manajemen mandiri mana yang efektif dan tidak efektif bagi mereka.<\/span><\/p>\n

Struktur MyLifeTool<\/b><\/p>\n

MyLifeTool terdiri dari lima buku panduan yang memuat berbagai aktivitas psikologi positif, yang mendorong individu untuk mengeksplorasi kekuatan dan potensi diri mereka. Penelitian telah menunjukkan bahwa <\/span>menjalani hidup yang penuh makna sangat penting bagi orang-orang dengan kondisi kronis jangka panjang<\/span><\/a>, dan <\/span>hal ini berkaitan dengan pertumbuhan pribadi serta hasil kesehatan yang lebih baik.<\/span><\/a><\/p>\n

Buku 1: \u201c<\/span>Me and my condition<\/span><\/i>\u201d berfokus pada identitas dan mulai melihat diri sendiri dengan cara yang lebih positif. Buku ini mengajak untuk lebih berbaik hati kepada diri sendiri dan menyadari bahwa kondisi yang dialami tidak mendefinisikan siapa diri Anda. Di dalamnya terdapat berbagai aktivitas yang mendorong orang untuk memikirkan siapa diri mereka sebenarnya, nilai-nilai yang mereka pegang, dan harapan mereka terhadap diri sendiri.<\/span><\/p>\n

Buku 2: \u201c<\/span>Embracing my body<\/span><\/i>\u201d mengeksplorasi strategi perencanaan dan pengaturan ritme aktivitas, yang sering ditemukan dalam program manajemen mandiri. Aktivitas-aktivitas dalam buku ini mendorong Anda untuk mendengarkan tubuh Anda, mengenali kapan Anda telah melakukan terlalu banyak hal, dan merefleksikan cara-cara mengelola tingkat energi Anda.<\/span><\/p>\n

Buku 3: \u201c<\/span>Taking charge<\/span><\/i>\u201d bertujuan untuk membantu Anda mengenali kekuatan diri, membangun ketahanan (resiliensi), dan memaksimalkan hari-hari yang baik. Buku ini mendorong Anda untuk lebih aktif dalam mengelola kondisi Anda dengan cara mempelajari lebih lanjut tentang kondisi tersebut dan bagaimana hal itu cocok dalam kehidupan Anda. Aktivitas dalam buku ini mencakup penetapan tujuan dan pengenalan kekuatan pribadi.<\/span><\/p>\n

Buku 4: \u201c<\/span>Connecting with others<\/span><\/i>\u201d mengakui pentingnya menerima dukungan, serta manfaat dari memberikan dukungan kepada orang lain \u2014 karena keduanya dapat memperkaya makna dan tujuan hidup. Aktivitas di dalamnya mengeksplorasi cara menyampaikan kebutuhan Anda kepada orang lain, seperti keluarga dan teman, serta kepada praktisi medis dan profesional lainnya.<\/span><\/p>\n

Buku 5: \u201c<\/span>What\u2019s important to me<\/span><\/i>\u201d membahas hal-hal yang memberi makna dan tujuan dalam hidup Anda, serta bagaimana Anda bisa menemukan waktu untuk diri sendiri. Setiap orang menemukan tujuan hidup dengan cara yang berbeda-beda: tetap aktif, memiliki alasan untuk bangun di pagi hari, atau menantang diri mereka sendiri.<\/span><\/p>\n

Buku Catatan Reflektif (Reflective Scrapbook)<\/b><\/p>\n

Untuk mendukung proses refleksi, MyLifeTool menyertakan sebuah scrapbook \u2014 ruang kreatif yang dapat membantu individu untuk memikirkan pengalaman, tujuan, dan pencapaian mereka. Scrapbook ini bersifat terbuka dan tidak mengarahkan secara kaku, sehingga pengguna bebas memilih teknik aktivitas kreatif yang sesuai dengan diri mereka, atau menggunakannya sebagai buku harian jika lebih nyaman. <\/span>Pendekatan kreatif<\/span><\/a> seperti ini dapat membantu individu mengeksplorasi pengalaman mereka secara lebih mendalam dan merefleksikan maknanya dengan cara yang lebih autentik.<\/span><\/p>\n

MyLifeTool telah digunakan oleh organisasi sektor sukarela dan praktisi kesehatan mental di Inggris. Alat ini tersedia secara gratis secara daring, baik untuk digunakan secara mandiri oleh individu dengan kondisi kronis, maupun oleh praktisi bersama pasien atau klien mereka.<\/span><\/p>\n

Evaluasi MyLifeTool<\/b><\/p>\n

Orang-orang yang menggunakan MyLifeTool selama 12 minggu<\/span><\/a> merasakan manfaatnya dalam mendukung manajemen mandiri, pertumbuhan pribadi, dan peningkatan penerimaan terhadap hidup dengan kondisi kronis. Pengukuran kesejahteraan (wellbeing) yang dilakukan sebelum dan sesudah penggunaan alat ini juga menunjukkan peningkatan dalam hal efikasi diri, pemberdayaan, dan kemampuan mengatur ritme aktivitas.<\/span><\/p>\n

Rekomendasi Praktis<\/b><\/p>\n

Lihat keseluruhan individu, bukan hanya diagnosisnya: <\/b>Kondisi kronis memengaruhi seluruh aspek kehidupan seseorang. Kita dapat mendukung mereka untuk merefleksikan bagaimana kondisi tersebut menyatu dalam kehidupan mereka, dengan mempertimbangkan kemungkinan perubahan dalam kondisi, situasi hidup, kebutuhan, dan tujuan mereka di masa depan.<\/span><\/p>\n

Manajemen mandiri adalah proses yang berkelanjutan: <\/b>Seseorang tidak bisa langsung menguasai manajemen mandiri hanya dengan mengikuti kursus singkat. Kondisi kronis bersifat jangka panjang, bahkan seumur hidup, dengan gejala dan dampak yang bisa berubah-ubah. Mendorong individu untuk merefleksikan proses manajemen mandiri mereka dapat membantu mereka beradaptasi dengan perubahan dalam kondisi dan kehidupan mereka dalam jangka panjang.<\/span><\/p>\n

Makna dan tujuan hidup: <\/b>Dukung individu dengan kondisi kronis untuk merefleksikan dan mengeksplorasi hal-hal yang memberi mereka makna dan tujuan dalam hidup.<\/span><\/p>\n

Fokus pada kekuatan: <\/b>Para pengguna MyLifeTool menghargai pendekatannya yang menekankan pada apa yang masih bisa dilakukan oleh individu dengan kondisi kronis, bukan pada keterbatasan mereka.<\/span><\/p>\n

[<\/span>diterjemahkan oleh Caroline Felicia dan Astin Sokang]<\/span><\/i><\/p>\n","protected":false},"excerpt":{"rendered":"

By\u00a0Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK and Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, UK\u00a0 Long-term conditions are a major concern for global health care systems given their high prevalence and disease burden, including their significant […]<\/p>\n","protected":false},"author":9,"featured_media":4309,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"By\u00a0Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK and Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, UK\u00a0<\/strong>\n\nLong-term conditions are a major concern for global health care systems given their <\/span>high prevalence<\/span><\/a> and <\/span>disease burden, including their significant impact on disability-adjusted life years.<\/span><\/a>\u00a0 They also have a significant <\/span>negative impact on health-related quality of life<\/span><\/a> and are associated with <\/span>higher rates of anxiety and depression<\/span><\/a> than the general population.<\/span>\n\nMyLifeTool<\/span><\/a> is a self-management tool for people living with any long-term condition (e.g. diabetes, multiple sclerosis, chronic pain, asthma, anxiety, neurodevelopmental conditions, Acquired Brain Injury, Fibromyalgia).\u00a0 It was developed in partnership with people with long-term conditions, members of <\/span>Neuro Key<\/span><\/a> and psychologists from Teesside University.\u00a0 It is underpinned by our <\/span>self-management framework<\/span><\/a> which takes a person-centred, non-instructive perspective on self-management.\u00a0 People with long-term conditions were at the heart of the project, forging the decisions on what MyLifeTool would become and choosing the name.<\/span>\n\nOur approach to self-management<\/b>\n\nSelf-management strategies for long-term conditions often <\/span>focus on medical outcomes and management strategies<\/span><\/a> and are too concerned with behaviour change, <\/span>neglecting the social and relational context<\/span><\/a>.\u00a0 Alternatively, self-management of long-term conditions can be viewed as a <\/span>lifelong, fluid process<\/span><\/a> which can change depending on life circumstances and symptom fluctuation.\u00a0 As a result, there are proposals to <\/span>move from instructional self-management approaches<\/span><\/a> to ones which support people to consider and develop their own self-management resources. With this in mind, we view self-management is a journey towards <\/span>finding or maintaining meaning and purpose in life<\/span><\/a>.\u00a0 It is an ongoing process that people approach from their own perspective, to fit with their life, aims and needs and changes in their condition.\u00a0 It is also about the person, not the diagnosis.\u00a0 For this reason, a large part of MyLifeTool requires users to reflect upon which self-management strategies do and do not work for them.<\/span>\n\nHow MyLifeTool is structured<\/b>\n\nMyLifeTool comprises five booklets which contain different positive psychology activities, encouraging people to explore their strengths.\u00a0 Research has found that <\/span>living a purposeful life is important to people with long-term conditions<\/span><\/a> and is <\/span>associated with personal growth and better health outcomes<\/span><\/a>.\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0<\/span>\n\nBook 1: \u201cMe and my condition\u201d,<\/b> focuses on identity and starting to see yourself in a more positive light.\u00a0 It is about being kinder to yourself and recognising that you are not defined by your condition.\u00a0 The booklet contains activities to encourage people to think about who they are, their values and what they expect from themselves.<\/span>\n\nBook 2<\/b>:<\/span> \u201cEmbracing my body\u201d, <\/b>explores planning and pacing strategies that you often see in self-management programmes.\u00a0 Activities encourage you to listen to your body, recognise when you have done too much and reflect upon ways to manage your energy levels.\u00a0<\/span>\n\nBook 3: \u201cTaking charge\u201d,<\/b> is about recognising your strengths, building resilience and making the most of the good days. It encourages you to be more active in your condition management by learning more about your condition and how it fits within your life.\u00a0 Activities include goal setting and recognising strengths.<\/span>\n\nBook 4: \u201cConnecting with others\u201d,<\/b> recognises the importance of receiving support, as well as the benefits of giving support to others, as both can enhance meaning and purpose in life.\u00a0 Activities explore how to communicate your needs to others, such as family and friends, but also medical practitioners and other professionals.<\/span>\n\nBook 5<\/b>: <\/span>\u201cWhat's important to me\u201d,<\/b> considers what gives you purpose in life and how you can find time for yourself.\u00a0 People find purpose in a variety of different ways: keeping busy; having a reason to get out of bed in the morning; challenging themselves.<\/span>\n\nThe Reflective Scrapbook<\/b>\n\nTo support reflection, MyLifeTool contains a scrapbook; a creative space that can help people to think about their experiences, aims and achievements.\u00a0 T<\/span>he scrapbook is open and non-directive, so people can use various creative activities techniques that suit them, or they can use the scrapbook as a diary if they prefer.\u00a0 <\/span>Creative approaches<\/span><\/a> like this can enable people to explore their experiences in detail and reflect upon their meaning in more authentic ways.<\/span>\u00a0<\/span>\n\nMyLifeTool is used by UK-based voluntary sector organisations and mental health practitioners. It <\/span>is available for free <\/span>online<\/span><\/a> for people with long-term conditions to use themselves or for practitioners to use with patients\/clients.<\/span>\n\nEvaluation of MyLifeTool<\/b>\n\nPeople who used MyLifeTool for 12 weeks<\/span><\/a> found it beneficial in supporting their self-management, personal growth and enhancing their acceptance of living with a long-term condition.\u00a0 Wellbeing measures taken before and after using the tool also show improvements in self-efficacy, empowerment and pacing ability.<\/span>\n\nPractical recommendations<\/b>\n\nSee the whole person, not the diagnosis<\/b>: Long-term conditions affect all aspects of a person\u2019s life.\u00a0 We can support people to reflect on how their condition fits into their lives, taking into consideration potential changes in their condition, life circumstances, needs and aims for the future.<\/span>\n\nSelf-management is ongoing<\/b>: A person cannot learn to self-manage their condition(s) by taking part in a short course.\u00a0 Long-term conditions are potentially life-long and symptoms and impact can fluctuate.\u00a0 Encouraging people to reflect on their self-management can support them to adapt to changes in their life circumstances and condition long term.<\/span>\n\nMeaning and purpose<\/b>: Support people with long-term conditions to reflect upon and explore what gives them meaning and purpose in life.<\/span>\n\nFocus on strengths<\/b>: People who have used MyLifeTool have valued the way it focuses on what people with long-term conditions can do, rather than what they can\u2019t do.<\/span>","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"footnotes":""},"categories":[13,24],"tags":[],"class_list":["post-4306","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-interventions","category-self-regulation"],"translation":{"provider":"WPGlobus","version":"3.0.2","language":"id","enabled_languages":["en","id","my","bg","zh","hr","cz","da","de","es","fr","gr","he","it","ja","kr","lv","lt","hu","nl","no","pl","pt","ro","ru","sk","fi","sv","tr","uk"],"languages":{"en":{"title":true,"content":true,"excerpt":false},"id":{"title":true,"content":true,"excerpt":false},"my":{"title":true,"content":true,"excerpt":false},"bg":{"title":true,"content":true,"excerpt":false},"zh":{"title":true,"content":true,"excerpt":false},"hr":{"title":false,"content":false,"excerpt":false},"cz":{"title":true,"content":true,"excerpt":false},"da":{"title":false,"content":false,"excerpt":false},"de":{"title":true,"content":true,"excerpt":false},"es":{"title":false,"content":false,"excerpt":false},"fr":{"title":true,"content":true,"excerpt":false},"gr":{"title":false,"content":false,"excerpt":false},"he":{"title":true,"content":true,"excerpt":false},"it":{"title":true,"content":true,"excerpt":false},"ja":{"title":true,"content":true,"excerpt":false},"kr":{"title":false,"content":false,"excerpt":false},"lv":{"title":false,"content":false,"excerpt":false},"lt":{"title":false,"content":false,"excerpt":false},"hu":{"title":false,"content":false,"excerpt":false},"nl":{"title":true,"content":true,"excerpt":false},"no":{"title":false,"content":false,"excerpt":false},"pl":{"title":true,"content":true,"excerpt":false},"pt":{"title":true,"content":true,"excerpt":false},"ro":{"title":false,"content":false,"excerpt":false},"ru":{"title":true,"content":true,"excerpt":false},"sk":{"title":true,"content":true,"excerpt":false},"fi":{"title":true,"content":true,"excerpt":false},"sv":{"title":false,"content":false,"excerpt":false},"tr":{"title":false,"content":false,"excerpt":false},"uk":{"title":true,"content":true,"excerpt":false}}},"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/posts\/4306","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/comments?post=4306"}],"version-history":[{"count":36,"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/posts\/4306\/revisions"}],"predecessor-version":[{"id":4845,"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/posts\/4306\/revisions\/4845"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/media\/4309"}],"wp:attachment":[{"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/media?parent=4306"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/categories?post=4306"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/practicalhealthpsychology.com\/id\/wp-json\/wp\/v2\/tags?post=4306"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}