{"id":4306,"date":"2025-08-05T13:04:38","date_gmt":"2025-08-05T13:04:38","guid":{"rendered":"https:\/\/practicalhealthpsychology.com\/?p=4306"},"modified":"2026-04-09T07:47:21","modified_gmt":"2026-04-09T07:47:21","slug":"mylifetool-a-person-centred-holistic-approach-to-the-self-management-of-long-term-conditions","status":"publish","type":"post","link":"https:\/\/practicalhealthpsychology.com\/fi\/2025\/08\/mylifetool-a-person-centred-holistic-approach-to-the-self-management-of-long-term-conditions\/","title":{"rendered":"MyLifeTool: Henkil\u00f6keskeinen, kokonaisvaltainen l\u00e4hestymistapa pitk\u00e4aikaissairauksien itsehoitoon"},"content":{"rendered":"

Kirjoittajat: Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, Iso-Britannia ja Jo Cole, Tees Valley, Durham ja North Yorkshire Neurological Alliance, Iso-Britannia<\/strong><\/p>\n

Pitk\u00e4aikaissairaudet ovat merkitt\u00e4v\u00e4 haaste maailmanlaajuisille terveydenhuoltoj\u00e4rjestelmille niiden korkean esiintyvyyden<\/a> ja tautitaakan vuoksi, mukaan lukien merkitt\u00e4v\u00e4 vaikutus elinvuosiin<\/a>. Ne heikent\u00e4v\u00e4t huomattavasti terveyteen liittyv\u00e4\u00e4 el\u00e4m\u00e4nlaatua<\/a> ja liittyv\u00e4t korkeampiin ahdistus- ja masennuslukuihin<\/a> verrattuna v\u00e4est\u00f6\u00f6n yleisesti.<\/p>\n

<\/p>\n

MyLifeTool<\/a> on itsehoidon ty\u00f6kalu ihmisille, jotka el\u00e4v\u00e4t mink\u00e4 tahansa pitk\u00e4aikaissairauden kanssa (esim. diabetes, MS-tauti, krooninen kipu, astma, ahdistus, neurokehitykselliset h\u00e4iri\u00f6t, aivovamma, fibromyalgia). Ty\u00f6kalu kehitettiin yhteisty\u00f6ss\u00e4 pitk\u00e4aikaissairauksia sairastavien, Neuro Key<\/a> -j\u00e4rjest\u00f6n j\u00e4senten ja Teessiden yliopiston psykologien kanssa. Sen perustana on itsehoidon viitekehys<\/a>, joka korostaa henkil\u00f6keskeist\u00e4, ei-ohjailevaa n\u00e4k\u00f6kulmaa. Pitk\u00e4aikaissairauksia sairastavat olivat projektin ytimess\u00e4 ja p\u00e4\u00e4ttiv\u00e4t ty\u00f6kalun sis\u00e4ll\u00f6st\u00e4 sek\u00e4 nimest\u00e4.<\/p>\n

L\u00e4hestymistapamme itsehoitoon<\/strong><\/p>\n

Perinteiset itsehoitostrategiat keskittyv\u00e4t usein l\u00e4\u00e4ketieteellisiin tuloksiin ja k\u00e4ytt\u00e4ytymisen muutokseen<\/a>, unohtaen sosiaalisen ja ihmissuhteisiin liittyv\u00e4n kontekstin<\/a>. Vaihtoehtoisesti itsehoito voidaan n\u00e4hd\u00e4 elinik\u00e4isen\u00e4, joustavana prosessina<\/a>, joka muuttuu el\u00e4m\u00e4ntilanteiden ja oireiden mukaan. N\u00e4in ollen on ehdotettu siirtymist\u00e4 ohjailevista malleista l\u00e4hestymistapoihin<\/a>, jotka tukevat ihmisi\u00e4 kehitt\u00e4m\u00e4\u00e4n omia voimavarojaan. Meille itsehoito on matka kohti merkityksen ja tarkoituksen l\u00f6yt\u00e4mist\u00e4 el\u00e4m\u00e4ss\u00e4<\/a> \u2013 Se on jatkuva prosessi, jota ihmiset l\u00e4hestyv\u00e4t omasta n\u00e4k\u00f6kulmastaan, sovittaakseen sen omaan el\u00e4m\u00e4\u00e4ns\u00e4, tavoitteisiinsa ja tarpeisiinsa sek\u00e4 muutoksiin heid\u00e4n voinnissaan. Kyse on my\u00f6s ihmisest\u00e4, ei diagnoosista. T\u00e4m\u00e4n vuoksi suuri osa MyLifeToolista edellytt\u00e4\u00e4 k\u00e4ytt\u00e4ji\u00e4 pohtimaan, mitk\u00e4 itsehoitostrategiat toimivat heille ja mitk\u00e4 eiv\u00e4t.<\/p>\n

MyLifeToolin rakenne<\/strong><\/p>\n

MyLifeTool koostuu viidest\u00e4 vihkosta, jotka sis\u00e4lt\u00e4v\u00e4t erilaisia positiivisen psykologian harjoituksia ja kannustavat ihmisi\u00e4 tutkimaan omia vahvuuksiaan. Tutkimukset ovat osoittaneet, ett\u00e4 tarkoituksellinen el\u00e4m\u00e4 on t\u00e4rke\u00e4\u00e4 pitk\u00e4aikaissairauksista k\u00e4rsiville ihmisille<\/a> ja liittyy henkil\u00f6kohtaiseen kasvuun sek\u00e4 parempiin terveysvaikutuksiin<\/a>.<\/p>\n

Kirja 1: \u201dMin\u00e4 ja sairauteni\u201d<\/strong> keskittyy identiteettiin ja siihen, miten voit alkaa n\u00e4hd\u00e4 itsesi my\u00f6nteisemm\u00e4ss\u00e4 valossa. Kyse on itselle lempeydest\u00e4 ja siit\u00e4, ett\u00e4 ymm\u00e4rt\u00e4\u00e4, ettei sairaus m\u00e4\u00e4rit\u00e4 sinua. Vihkossa on harjoituksia, jotka kannustavat pohtimaan, kuka olet, mitk\u00e4 ovat arvosi ja mit\u00e4 odotat itselt\u00e4si.<\/p>\n

Kirja 2: \u201dOman kehoni hyv\u00e4ksyminen\u201d<\/strong> k\u00e4sittelee suunnittelu- ja jaksotusstrategioita, joita usein n\u00e4kee itsehoito-ohjelmissa. Harjoitukset kannustavat kuuntelemaan omaa kehoa, tunnistamaan, milloin olet tehnyt liikaa, ja pohtimaan keinoja hallita energiatasoja.<\/p>\n

Kirja 3: \u201dOtan ohjat k\u00e4siin\u201d<\/strong> liittyy omien vahvuuksien tunnistamiseen, resilienssin rakentamiseen ja hyvien p\u00e4ivien hy\u00f6dynt\u00e4miseen. Se kannustaa aktiivisempaan otteeseen sairauden hallinnassa oppimalla lis\u00e4\u00e4 omasta sairaudesta ja sen sovittamisesta omaan el\u00e4m\u00e4\u00e4n. Harjoituksiin kuuluu tavoitteiden asettaminen ja vahvuuksien tunnistaminen.<\/p>\n

Kirja 4: \u201dYhteys muihin\u201d<\/strong> korostaa tuen saamisen merkityst\u00e4 sek\u00e4 tuen antamisen hy\u00f6tyj\u00e4, sill\u00e4 molemmat voivat lis\u00e4t\u00e4 el\u00e4m\u00e4n merkityksellisyytt\u00e4 ja tarkoitusta. Harjoitukset k\u00e4sittelev\u00e4t, miten ilmaista omia tarpeita muille, kuten perheelle ja yst\u00e4ville, mutta my\u00f6s l\u00e4\u00e4k\u00e4reille ja muille ammattilaisille.<\/p>\n

Kirja 5: \u201dMik\u00e4 on minulle t\u00e4rke\u00e4\u00e4\u201d<\/strong> pohtii, mik\u00e4 tuo el\u00e4m\u00e4\u00e4n tarkoitusta ja miten l\u00f6yt\u00e4\u00e4 aikaa itselle. Ihmiset l\u00f6yt\u00e4v\u00e4t tarkoituksen monin eri tavoin: pysym\u00e4ll\u00e4 aktiivisina, omistamalla syyn nousta aamulla s\u00e4ngyst\u00e4, haastamalla itse\u00e4\u00e4n.<\/p>\n

Reflektiivinen leikekirja<\/strong><\/p>\n

Reflektion tukemiseksi MyLifeTool sis\u00e4lt\u00e4\u00e4 leikekirjan \u2013 luovan tilan, joka voi auttaa ihmisi\u00e4 pohtimaan kokemuksiaan, tavoitteitaan ja saavutuksiaan. Leikekirja on avoin ja ohjaamaton, joten ihmiset voivat k\u00e4ytt\u00e4\u00e4 erilaisia luovia menetelmi\u00e4<\/a>, jotka sopivat heille, tai k\u00e4ytt\u00e4\u00e4 sit\u00e4 p\u00e4iv\u00e4kirjana. T\u00e4llaiset luovat l\u00e4hestymistavat voivat auttaa ihmisi\u00e4 tutkimaan kokemuksiaan yksityiskohtaisesti ja pohtimaan niiden merkityst\u00e4 aidommilla tavoilla.<\/p>\n

MyLifeToolia k\u00e4ytt\u00e4v\u00e4t Isossa-Britanniassa toimivat vapaaehtoisj\u00e4rjest\u00f6t ja mielenterveysalan ammattilaiset. Se on saatavilla ilmaiseksi verkossa<\/a> pitk\u00e4aikaissairauksista k\u00e4rsiville henkil\u00f6ille omaan k\u00e4ytt\u00f6\u00f6n tai ammattilaisille potilaiden\/asiakkaiden kanssa k\u00e4ytett\u00e4v\u00e4ksi.<\/p>\n

MyLifeToolin arviointi<\/strong><\/p>\n

Ihmiset, jotka k\u00e4yttiv\u00e4t MyLifeToolia 12 viikon ajan<\/a>, kokivat sen hy\u00f6dylliseksi itsehoidon tukemisessa, henkil\u00f6kohtaisessa kasvussa ja pitk\u00e4aikaissairauden hyv\u00e4ksymisess\u00e4. Hyvinvointimittaukset ennen ja j\u00e4lkeen ty\u00f6kalun k\u00e4yt\u00f6n osoittivat my\u00f6s parannuksia itsevarmuudessa, voimaantumisessa ja jaksotuksen hallinnassa.<\/p>\n

K\u00e4yt\u00e4nn\u00f6n suositukset<\/strong><\/p>\n

N\u00e4e koko ihminen, ei diagnoosia:<\/strong> Pitk\u00e4aikaissairaudet vaikuttavat kaikkiin el\u00e4m\u00e4n osa-alueisiin. Voimme tukea ihmisi\u00e4 pohtimaan, miten sairaus sopii heid\u00e4n el\u00e4m\u00e4\u00e4ns\u00e4, huomioiden mahdolliset muutokset sairaudessa, el\u00e4m\u00e4ntilanteessa, tarpeissa ja tulevaisuuden tavoitteissa.<\/p>\n

Itsehoito on jatkuvaa<\/strong>: Ihminen ei voi oppia hallitsemaan sairauttaan osallistumalla lyhyeen kurssiin. Pitk\u00e4aikaissairaudet voivat kest\u00e4\u00e4 koko el\u00e4m\u00e4n, ja oireet sek\u00e4 vaikutukset vaihtelevat. Ihmisten kannustaminen pohtimaan itsehoitoaan voi auttaa heit\u00e4 sopeutumaan muutoksiin el\u00e4m\u00e4ss\u00e4 ja sairaudessa pitk\u00e4ll\u00e4 aikav\u00e4lill\u00e4.<\/p>\n

Merkitys ja tarkoitus<\/strong>: Tue ihmisi\u00e4 pitk\u00e4aikaissairauksien kanssa pohtimaan ja tutkimaan, mik\u00e4 tuo heille merkityst\u00e4 ja tarkoitusta el\u00e4m\u00e4\u00e4n.<\/p>\n

Keskity vahvuuksiin:<\/strong> MyLifeToolin k\u00e4ytt\u00e4j\u00e4t ovat arvostaneet sen tapaa keskitty\u00e4 siihen, mit\u00e4 ihmiset pitk\u00e4aikaissairauksien kanssa voivat tehd\u00e4, eik\u00e4 siihen, mit\u00e4 he eiv\u00e4t voi tehd\u00e4.<\/p>\n

Suomennettu: [ Eeva Kettunen ]<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

By\u00a0Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK and Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, UK\u00a0 Long-term conditions are a major concern for global health care systems given their high prevalence and disease burden, including their significant […]<\/p>\n","protected":false},"author":9,"featured_media":4309,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"By\u00a0Dr Stephanie K\u0131l\u0131n\u00e7, Teesside University, UK and Jo Cole, the Tees Valley, Durham and North Yorkshire Neurological Alliance, UK\u00a0<\/strong>\n\nLong-term conditions are a major concern for global health care systems given their <\/span>high prevalence<\/span><\/a> and <\/span>disease burden, including their significant impact on disability-adjusted life years.<\/span><\/a>\u00a0 They also have a significant <\/span>negative impact on health-related quality of life<\/span><\/a> and are associated with <\/span>higher rates of anxiety and depression<\/span><\/a> than the general population.<\/span>\n\nMyLifeTool<\/span><\/a> is a self-management tool for people living with any long-term condition (e.g. diabetes, multiple sclerosis, chronic pain, asthma, anxiety, neurodevelopmental conditions, Acquired Brain Injury, Fibromyalgia).\u00a0 It was developed in partnership with people with long-term conditions, members of <\/span>Neuro Key<\/span><\/a> and psychologists from Teesside University.\u00a0 It is underpinned by our <\/span>self-management framework<\/span><\/a> which takes a person-centred, non-instructive perspective on self-management.\u00a0 People with long-term conditions were at the heart of the project, forging the decisions on what MyLifeTool would become and choosing the name.<\/span>\n\nOur approach to self-management<\/b>\n\nSelf-management strategies for long-term conditions often <\/span>focus on medical outcomes and management strategies<\/span><\/a> and are too concerned with behaviour change, <\/span>neglecting the social and relational context<\/span><\/a>.\u00a0 Alternatively, self-management of long-term conditions can be viewed as a <\/span>lifelong, fluid process<\/span><\/a> which can change depending on life circumstances and symptom fluctuation.\u00a0 As a result, there are proposals to <\/span>move from instructional self-management approaches<\/span><\/a> to ones which support people to consider and develop their own self-management resources. With this in mind, we view self-management is a journey towards <\/span>finding or maintaining meaning and purpose in life<\/span><\/a>.\u00a0 It is an ongoing process that people approach from their own perspective, to fit with their life, aims and needs and changes in their condition.\u00a0 It is also about the person, not the diagnosis.\u00a0 For this reason, a large part of MyLifeTool requires users to reflect upon which self-management strategies do and do not work for them.<\/span>\n\nHow MyLifeTool is structured<\/b>\n\nMyLifeTool comprises five booklets which contain different positive psychology activities, encouraging people to explore their strengths.\u00a0 Research has found that <\/span>living a purposeful life is important to people with long-term conditions<\/span><\/a> and is <\/span>associated with personal growth and better health outcomes<\/span><\/a>.\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0<\/span>\n\nBook 1: \u201cMe and my condition\u201d,<\/b> focuses on identity and starting to see yourself in a more positive light.\u00a0 It is about being kinder to yourself and recognising that you are not defined by your condition.\u00a0 The booklet contains activities to encourage people to think about who they are, their values and what they expect from themselves.<\/span>\n\nBook 2<\/b>:<\/span> \u201cEmbracing my body\u201d, <\/b>explores planning and pacing strategies that you often see in self-management programmes.\u00a0 Activities encourage you to listen to your body, recognise when you have done too much and reflect upon ways to manage your energy levels.\u00a0<\/span>\n\nBook 3: \u201cTaking charge\u201d,<\/b> is about recognising your strengths, building resilience and making the most of the good days. It encourages you to be more active in your condition management by learning more about your condition and how it fits within your life.\u00a0 Activities include goal setting and recognising strengths.<\/span>\n\nBook 4: \u201cConnecting with others\u201d,<\/b> recognises the importance of receiving support, as well as the benefits of giving support to others, as both can enhance meaning and purpose in life.\u00a0 Activities explore how to communicate your needs to others, such as family and friends, but also medical practitioners and other professionals.<\/span>\n\nBook 5<\/b>: <\/span>\u201cWhat's important to me\u201d,<\/b> considers what gives you purpose in life and how you can find time for yourself.\u00a0 People find purpose in a variety of different ways: keeping busy; having a reason to get out of bed in the morning; challenging themselves.<\/span>\n\nThe Reflective Scrapbook<\/b>\n\nTo support reflection, MyLifeTool contains a scrapbook; a creative space that can help people to think about their experiences, aims and achievements.\u00a0 T<\/span>he scrapbook is open and non-directive, so people can use various creative activities techniques that suit them, or they can use the scrapbook as a diary if they prefer.\u00a0 <\/span>Creative approaches<\/span><\/a> like this can enable people to explore their experiences in detail and reflect upon their meaning in more authentic ways.<\/span>\u00a0<\/span>\n\nMyLifeTool is used by UK-based voluntary sector organisations and mental health practitioners. It <\/span>is available for free <\/span>online<\/span><\/a> for people with long-term conditions to use themselves or for practitioners to use with patients\/clients.<\/span>\n\nEvaluation of MyLifeTool<\/b>\n\nPeople who used MyLifeTool for 12 weeks<\/span><\/a> found it beneficial in supporting their self-management, personal growth and enhancing their acceptance of living with a long-term condition.\u00a0 Wellbeing measures taken before and after using the tool also show improvements in self-efficacy, empowerment and pacing ability.<\/span>\n\nPractical recommendations<\/b>\n\nSee the whole person, not the diagnosis<\/b>: Long-term conditions affect all aspects of a person\u2019s life.\u00a0 We can support people to reflect on how their condition fits into their lives, taking into consideration potential changes in their condition, life circumstances, needs and aims for the future.<\/span>\n\nSelf-management is ongoing<\/b>: A person cannot learn to self-manage their condition(s) by taking part in a short course.\u00a0 Long-term conditions are potentially life-long and symptoms and impact can fluctuate.\u00a0 Encouraging people to reflect on their self-management can support them to adapt to changes in their life circumstances and condition long term.<\/span>\n\nMeaning and purpose<\/b>: Support people with long-term conditions to reflect upon and explore what gives them meaning and purpose in life.<\/span>\n\nFocus on strengths<\/b>: People who have used MyLifeTool have valued the way it focuses on what people with long-term conditions can do, rather than what they can\u2019t 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